This page has been created to help raise money to aid in my daughter Allanas treatment and recovery. Accepting donations thru paypal, check or in any other form....Please help...Contact me and help us put up a fight for our daughter!!
In December of 2004 my daughter was diagnosed with a rare condition called Severe Idiopathic Infantile Scoliosis. Now Scoliosis can be somewhat common in adolescent children but is very rare in children under 3. As a fact of matter less then 1-2% of children under the age of 3 in the world will ever get this and less then 10% of those children will ever need treatment, my daughters condition is considered so rare because her spine developed below her left shoulderblade and has deformed her ribcage due to the bend in her back, possibly causing problems with things like her breathing and putting pressure on her heart. Even if we get her spine straightnened, she very well will still need rib replacement surgery.
This condition is treatable and she will go on to hopefully lead a somewhat normal life, but currently requires surgery every 6 weeks and she will need therapy and bracing probably until she is 14 and has stopped developing and will probably need some sort of treatment for the rest of her life.
Shriners childrens hospital in Portland Oregon has been a god send and is taking care of surgery and medical needs by donation for us after our insurance company dropped us with no warning and has been everything to us. But we are experiencing other expenses we cannot afford. We have to drive a thousand miles round trip every 6 weeks for her surgeries and they do not pay for things like hotel. Also we have had to continously buy new clothes to fit her in her casts and special shoes due to her delayed walking, car seats to transport her in, Pediasure to boost her weight (risser casts can be hard on little bodies, destroying up to 10% of her muscles)and various other things included other medical visits outside of Shriners that we have to keep. Me and my husband both work, but with 2 children and bills, it seems impossible to keep up.
We are desperate for any kind of assistance or help, would be greatly appreciated, and smiled upon by our daughter. Please help us at the shot we might be able to give her a somewhat normal life with the help of kind souls. I love everyone for there help, if even just reading this has brought a little attention to other people with this disorder.
Please contact me with any info, questions or donations or even just to see more pictures of my little Allana!!
