This page has been created to help aid in my daughter Allanas treatment and recovery. Accepting donations thru paypal, check or in any other form....Contact me anytime.
In December of 2005 my daughter was diagnosed with a rare condition called Severe Idiopathic Infantile Scoliosis. Now Scoliosis can be somewhat common in adolescent children but is very rare in children under 3. As a fact of matter less then 1-2% of children under the age of 3 in the world will ever get this and less then 10% of those children will ever need treatment, my daughters condition is considered so rare because her spine developed below her left shoulderblade and has deformed her ribcage due to the bend in her back, possibly causing problems with things like her breathing and putting pressure on her heart. Even if we get her spine straightnened, she very well will still need rib replacement surgery.
This condition is treatable and she will go on to hopefully lead a somewhat normal life, but currently requires surgery every 6 weeks and she will need therapy and bracing probably until she is 14 and has stopped developing and will probably need some sort of treatment for the rest of her life.
Shriners however has been a godsend, paying for transportation and all of the medical treatment, she however is also developmentally delayed and between all the things she requires, we are strapped.
We are here for any kind of assistance or help, and it would be greatly appreciated, and smiled upon by our daughter. I love everyone for there help,in any form, if even just reading this has brought a little attention to other people with this condition.
Please contact me with any info, questions or donations or even just to see more pictures of my little Allana!!
