She no longer is required to go into surgery for casts and moldings.
She is now seen closer to 4-6 months
Her back is currently at the best it's been so far 23 degrees, on its own.
She is walking well, riding scooters and living just like other 3 year olds.
She is now in school and therapy and doing very well
Allana is now receiving disability for developmental delays and speech problems stemmed from all her treatment but is in state programs for special schooling and is making big advancements.
Thank you all for your kind thoughts and i will update again soon!
Posted in Helping Allana on Apr 8, 2007... modified on Apr 9, 2007
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I wanted to post an update on Allana, though we are far from done with her treatment, Allana has officially gone into her last cast December 20 with a degree curve of 12 DEGREES..yaya so she is no longer considered severe, as a matter of fact she is 2 degrees from not having scoliosis at all, though she will more then likely need rib replacement surgery, she is doing much better. Feb. 21 she will have her last cast removed and be placed back in a brace for an undetermined amount of time if Dr. d'Mato decides not to recast her for stabilazation reasons. I wanted to thank everyone for there prayers and kind thoughts. Thank you
This page has been created to help aid in my daughter Allanas treatment and recovery. Accepting donations thru paypal, check or in any other form....Contact me anytime.
In December of 2005 my daughter was diagnosed with a rare condition called Severe Idiopathic Infantile Scoliosis. Now Scoliosis can be somewhat common in adolescent children but is very rare in children under 3. As a fact of matter less then 1-2% of children under the age of 3 in the world will ever get this and less then 10% of those children will ever need treatment, my daughters condition is considered so rare because her spine developed below her left shoulderblade and has deformed her ribcage due to the bend in her back, possibly causing problems with things like her breathing and putting pressure on her heart. Even if we get her spine straightnened, she very well will still need rib replacement surgery.
This condition is treatable and she will go on to hopefully lead a somewhat normal life, but currently requires surgery every 6 weeks and she will need therapy and bracing probably until she is 14 and has stopped developing and will probably need some sort of treatment for the rest of her life.
Shriners however has been a godsend, paying for transportation and all of the medical treatment, she however is also developmentally delayed and between all the things she requires, we are strapped.
We are here for any kind of assistance or help, and it would be greatly appreciated, and smiled upon by our daughter. I love everyone for there help,in any form, if even just reading this has brought a little attention to other people with this condition.
Please contact me with any info, questions or donations or even just to see more pictures of my little Allana!!
You know I'm an awesome seamstress it's one thing I am great at...I only need to figure out financing and a committed group to make it work. The great thing is it could be done
From different states ... see full post
Update 2/17/2012: I am incredibly sorry to report that Mason left this world for a better place last night. Your continued support is so appreciated.
So many of you know and love our f... see full post
My fiance suffers from hip dislocated pain ever since he could remember. He Limps and cannot bend to touch his own toes, cannot sit or lean back or towards, cannot open his leg wider then 2 1/2 feet a... see full post